Ellis is doing very well! He was taken off the convention ventilator last week and briefly put on the CPAP. He did not dig the CPAP at all and was moved to high-humidity about 4 hours later. Each breath he takes now is his own, while still being supplied a little oxygen through the nasal cannula. His blood gas numbers have remained at good levels for over a week, so his team has stopped the daily blood test. No more pricks on those little feet!!!
Doctors were able to remove is IV line after weaning the few remaining medications. He is now given Morphine for pain and Clonidine to help with withdrawal from Versed and Fentanyl. And now that he is off those powerful drugs, we are seeing more movement in his limbs everyday - very encouraging!
Ellis is on a continuous feed of breast milk through a feeding tube. This week, his team will transition him to bolus feedings to mimic a regular feeding schedule. Yesterday, we introduced the bottle! He sucked down about 8ml. Everyone has warned us that feedings are typically the last hurdle to overcome and it can take some time for a NICU baby to master suck, swallow, and breathe. It is all up to you, Ellis!
Lilah and Ellis demonstrate their silent film skills as I try to direct a tender moment!
What a wonderful video. I am so happy to see your children together.
ReplyDeleteMuch Love, Julie
That is just way too cute! What a great moment to have. Ellis looks great, and it sounds like you all doing well.
ReplyDeleteSarah
Sooo happy for you guys. He seems to be doing great. Let us know if you need ANYTHING! Lilah is gorgeous.
ReplyDeleteHugs,
The Brinkmann's
I think that is the sweetest thing I have seen in such a long time, Lilah was rubbing him like such a big sister!!! Mr. Ellis Miracle looks GREAT. I came to see him the other day but he was asleep. Cannot wait to see him again
ReplyDeleteShannon RN CICU
What a joy to see both your childern together! Tender, tender, moments...thank you so much for sharing...we continue to pray that Ellis improves w/each day that passes...so precious are both your baby's...Kathy & Mike
ReplyDeleteIt's so awesome to see the two of them together. You are continually in our prayers. It reminds me of when Dominick was in the NICU after he was born and Tyler, Carmen, & Isabel came to see him. I'm so happy for your family. If there's anything you need, let me know.
ReplyDeleteTodd, Maria, Tyler, Carmen, Isabel & Dominick
Oh my goodness!!! Ellis looks FANTASTIC and I love seeing him and Lilah interact. What a great video!
ReplyDeleteThank you for posting this Christine! That was beautiful!! Lilah looks like she is just in awe of her baby brother, and all she can think to do is just touch him. Love it! And love all the good news coming from the Faron section of the NICU :-) We are in total awe of your strength in getting through this, and we can't wait to meet Ellis!!
ReplyDeleteHow beautiful! We did the same with the boys too!! By far, my favorite video. Need to share "Round, Round the Garden" with you. :) What a wonderful big sister!
ReplyDeleteLove you all!
Traci, Greg, Grady and Gav
"GOOD NEWS"! Ellis, You and Your family are in our thoughts and prayers. "Hang tough"!
ReplyDeleteDave Tomasovic and family