week in review

Ellis continues on the road to recovery! On Monday, his team moved him from the conventional vent to high humidity (oxygen is supplied through nasal cannula). After about 14 hours, he was moved to the CPAP because he was working too hard to breathe. But even though his blood gas numbers improved with the CPAP, Ellis was re-intibated early Tuesday evening. The plan is to keep Ellis on the conventional vent on low settings until after his brain MRI which is scheduled for tomorrow afternoon.

Ellis is able to move his hands and feet, and initiating movements in his shoulders, trunk, elbows and knees. While these movements are small, they are very, very good signs that he may be able to regain motor function. His muscles are still very weak after not moving for 4 weeks.

Ellis is acting more and more like a baby who is not so sick. He cries when he has a dirty diaper, spits up, smiles, and even took to a pacifier pretty well. And he was moved to a big boy bed…a crib!


I'm back to working part-time to save remaining FMLA for when Ellis comes home. Thank you all for your continued support.

Love - Christine, James, Lilah, and Ellis

Nasal Cannula

CPAP

Before re-intibation