Ellis' team has been droppin' the H word ... HOME! If everything stays on course, we expect to bring our son home in a week or two. It is so moving to type those words. Over 5 weeks ago we were planning his funeral, then after coming off ECMO, we considered having him home by Thanksgiving a long shot, with Christmas being more realistic. Ellis’ recovery has been extraordinary.
His feeding tube was removed yesterday and he continues to feed on demand – when he wants and how much. He is either nursing or taking a bottle, and so far, is gaining the appropriate amount of weight. Also, Ellis is down to .1 liter of oxygen, which is low enough to bring him home. That is just a small whiff, where we plan to wean him over the following weeks. So the criteria for coming home are: 1) takes all feedings by mouth; 2) wakes when hungry; and 3) passes a standard car seat tolerance test. The latter insures that Ellis is able to maintain his breathing for 2 hours while in the car seat.
We are so fortunate for Ellis' continued progress and milestones.
Here is Ellis’ inspirational Halloween costume – enjoy!
You can view here below or click on this YouTube link: http://www.youtube.com/watch?v=knbTrOqZr5M
for a clearer and larger version. Thank you again to everyone for your comments, support, and thoughts directed toward our son. We are so grateful to all that has been done for Ellis.
Take care; James, Christine, and Lilah.