Monday, September 28, 2009

24 hours

Since we arrived at Children’s, staff and parents have shared stories of how it can take just 24 hours for a baby to turn around and once a baby starts turning around, the recovery speeds up! For the past month, we have been hoping and praying for 24 hours.

It looks like Ellis’ 24 hours was last Wednesday/Thursday, between the two ECMO clamp tests. Ellis is doing well. He continues to show improvement everyday. Today, he started taking some of his own breaths, which you can see recorded by the ventilator. His team continues to turn down the ventilator settings and oxygen he is receiving – he was at 100% oxygen and is now down to about 70%. When he is agitated and his stats start to rise, we are able to calm him with our voices. Amazing!!!

Today was a great day. Today, we talked about Ellis coming home.

That’s right! If he continues to progress at the same rate and has no setbacks, Ellis might be able to come home in a month! Just last Wednesday, James and I were saying our goodbyes to Ellis and that night spoke with our parents about funeral arrangements. And now we might bring him home.

Thank you all for your prayers, positive thoughts and energy. We are so grateful!

Love,

Christine, James, Lilah, and Ellis

9 comments:

  1. Happy 1 month birthday, baby Ellis!
    You are such a strong and wonderful little guy.
    My kids and I, (esp. my youngest, Racquel-age 10) pray for you every night.

    Lots of love to the whole Faron family.

    Michelle Avanzado

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  2. Ellis
    Keep battling little man, its a long road but it sounds like your a fighter. Our prayers are with you and your family.


    Cast your cares upon the Lord, for he cares about you.
    I Peter 5:7
    Jim and Erin Morrissey
    Maddie-Carter-and Maggie

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  3. Great to hear! Go Ellis!

    Marc, Sarah, Elias, Mira, and Jonah

    http://missmiras.blogspot.com

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  4. Wonderful, wonderful news!!! What a special little soul Ellis is! Keep fighting Ellis! prayers coming your way...Kathy

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  5. Keep up the great work Ellis, we are all thinking about you! Love Kristie

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  6. We are so excited to hear all of your wonderful news! Go Ellis. We keep all of you in our thoughts, all the time.
    Sarah

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  7. This is so wonderful to read, we just can't wait to meet him!
    amy, chris, and Kane.

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  8. We check your blog daily for updates and it was just so wonderful to see you sounding so happy and to read such positive news.

    Keep it up little Ellis - Jesse and Daisy send a big kiss.

    love to all,
    Kirsti, Jamie and kids

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