The process of weening Ellis off ECMO is underway - his life is now supported by ECMO, a high-frequency oscillation ventilator, and nitric oxide. Over the next day or so, the NICU team will move the ECMO settings lower and compensate support with the oscillator and nitric. Because Ellis did not respond to ECMO as well as his doctors anticipated, the team felt it was best to try to ween him while he is stable.
If the weening does not got so well, he will stay on ECMO and they will likely switch out the machine...which has its own complications and usually does not have a positive result.
Thank you for all your prayers and positive thoughts. Today has not been a very good day. The little guy next to Ellis is being put on ECMO as I type this post. James and I offered what we could to his parents. And they were able to see Ellis and how the ECMO machine is hooked up. Our prayers are with this family.
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Dear Christine
ReplyDeleteMy James and I are sending you both bucketloads of love and willing little Ellis to be strong and get through this. We think about you all the time. Big, big, big love to you and an extra huge hug.
xxx kirsti
Christine and James- all three of you have been placed on a prayer list as far as my email will send... Hoping that your Precious baby Ellis is doing better with each day that passes- holding all three of you in my heart and prayers...Kathy
ReplyDeleteJim and Christine-
ReplyDeleteGreg,I and the boys are sending you all of our love, prayers and support for Ellis, you both and Lilah. Your strength is amazing and on-going prayer for continued success in Ellis' recovery is shared. If there is any way we can help with anything, please let us know (any time of day or night!)
Love you all! Traci
Christine,
ReplyDeleteYou, James, Lilah, and Ellis are always in my thoughts and prayers. You and James are strong wonderful people and your strength and courage has truly been inspirational. I am sorry that you both are having to go through this but please know that you all are loved by many. I know you know this but if you need me, I'm always here for you!
With much love,
Margarita
Jim, Christine, Lilah,and Ellis,
ReplyDeleteWe love you all very much and a minute does not go by that you are not in our thoughts and prayers. May your strength and love for each other continue to support you during these times of turmoil and may Ellis realize that our love, support and prayers are constantly with him as well as with you. Realize that you are not alone on this journey, many are walking this path with you. If you need us, we will be there for you. We love all of you!!!
Aunt Mary and Uncle Rick
Christine and James -
ReplyDeleteOur thoughts and prayers are with Ellis and your family. If there is anything that you need, please let us know how we can help - we are not far away.
Marc, Sarah, Elias, Mira and Jonah Bertolino
http://missmiras.blogspot.com