Subscribe to:
Post Comments (Atom)
skip to main |
skip to sidebar
his birth
Ellis was born on August 27th, 2009 at 4:23am, weighed 7.2 lbs and was 21 inches. Labor was short; he was born 6 hours after the first contraction. My pregnancy and his birth were uncomplicated except for the presence of meconium during delivery, which he inhaled. James and I were able to hold him for a couple minutes each and then Ellis was taken away for a chest x-ray...and life support. We have been unable to hold him since.
his diagnosis
Ellis was diagnosed with meconium aspiration syndrome (MAS) and rushed to Saint Louis Children's Hospital 14 hours after his birth. Because Ellis is not recovering as quickly as most newborns with MAS do, a lung biopsy and blood tests were performed - these ruled out some rare disorders. At this time, his doctors believe that it is just a severe reaction to the meconium which has contributed to Ellis’ slow recovery, but they admit they are not 100% sure and continue to look for other causes, such as Persistent Pulmonary Hypertension of the Newborn (PPHN).
Blog Archive
-
▼
2009
(33)
-
▼
September
(20)
- holding ellis
- Ellis Faron Wakes Up (Video)
- awake
- prayers for benjamin
- 24 hours
- hey, turn that ventilation down!
- 30 hours later
- the setback on ecmo
- no mo' ecmo
- going off ecmo
- still on ecmo
- children's garden
- because of you
- uncharted treatment
- what to wear?
- lung transplant?
- day by day, hour by hour
- weening off ecmo
- poo really does happen, twice!
- the end of ecmo?
-
▼
September
(20)
About Me
- Christine
- Saint Louis, Missouri
Before ECMO
ECMO Machine
Mom, Dad, and Ellis
Our Family
Oh my goodness, this is such WONDERFUL news!! The pictures are truly amazing!! Lots of love, continued strength and best wishes from Switzerland!!
ReplyDeleteThose pictures are amazing! It must have been an extraordinary moment. Thrilled for you both xxx Kirsti
ReplyDeleteHow precious! What a joyful moment!!
ReplyDeleteWhat beautiful eyes. So, so, so happy for all of you!
ReplyDeleteThe Brinkmanns
Christine- you and your family's amazing strenth-you guy's will overcome anything. Keep lots of positive thoughts and plenty of prayer. I am sure God will be with you all every step of the way. I will prayer for your little guy and your strength & sanity. Keep your chin up.
ReplyDeleteMelinda Salas
Wow, he is adorable! What big beautiful eyes! I am so glad that he is making such progress.
ReplyDeleteLisa O'Hara
this is excellent. we're so excited for you guys! lilato got the biggest smile when she saw ellis' picture. can't wait to get to meet him. thanks again for keeping everyone informed.
ReplyDeleteSo glad there was a turn around! So happy! Sounded like he decided that he really wanted to live and not have that funeral. What a journey for you all.
ReplyDeleteI'm glad there is light at the end of this tunnel.
Ana ( I worked with james at trivers :) )
That is the most wondeful video! He is so beautiful. I started crying just tears of joy just watching it so I can't even begin to imagine what you're feeling. I had to go in to the office today so I was telling my co workers about him waking up. They were all cheering for him and very happy for all of you.
ReplyDeleteYeah Ellis! You're doing great!
Jim and Christine,
ReplyDeleteYou have a beautiful little boy. Our prayers are with Ellis and his family everyday.
YOU GO ELLIS. YOU ARE DOING GREAT.
He will be home soon, healthy and happy. Keep the prayers and positive thoughts with you at all times.
Dave & Judy Tomasovic