Friday, September 25, 2009

30 hours later

It has been 30 hours since Ellis was taken off ECMO, and he is holding his own. Go Ellis!!!! The NICU team has been able to go down on some oscillator settings. While these adjustments are small, they are in the right direction. He is waking up from the chemical paralysis, and we are seeing more finger and eye movement. Amazing!!! Everyone is very pleased with his progress, but remains cautiously optimistic.

Here are some pictures from Wednesday, before Ellis went off ECMO.

An early one month birthday party


ECMO clamp test


Stats during test...we have NEVER seen stats like this!
Green is heart rate; red is blood pressure; blue are oxygen levels measured in his tissue.


After laying in the same position for almost 3 weeks, Ellis' head is a little flat on his left side!
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15 comments:

  1. AnonymousSeptember 25, 2009 at 7:22 PM

    we're so happy to to hear the wonderful news. Yeah Ellis!! We continue to pray in our own way for your whole family. Love the birthday photo!
    Love, Jen and Mike

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  2. AnonymousSeptember 25, 2009 at 8:00 PM

    Yay! Yay! Yay! I am so happy to be reading the news right now! He is a fighter! Go baby Go!!!!
    -Jacquie Champoux Hove

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  3. AnonymousSeptember 25, 2009 at 8:23 PM

    Go Ellis!!!!!!

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  4. AnonymousSeptember 25, 2009 at 8:26 PM

    Great news! Go Ellis!
    The Brinkmanns

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  5. UnknownSeptember 25, 2009 at 8:37 PM

    He's so beautiful!! This is such fantastic news!!

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  6. AnonymousSeptember 25, 2009 at 8:46 PM

    Awesome! We've been praying for a miracle since we heard he was going off ECMO.

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  7. Bryan, Mulima and LilatoSeptember 25, 2009 at 9:12 PM

    Thank you for the updates & keeping everyone informed. Keep it up, Ellis! We send our love.

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  8. AnonymousSeptember 26, 2009 at 5:37 AM

    Awesome news! Ellis is a very strong and determined little boy. We pray for all of you every day in this long journey.Remember to take care of yourselves too. Thanks so much for the posts and pictures. I loved the fashion show and garden.

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  9. AnonymousSeptember 26, 2009 at 5:43 AM

    Christine, James,and Lilah--

    Wonderful to hear positive news:> You go get them Ellis!! We are thinking of you, James, and Lilah everyday. Thanks for keeping us informed. Brenda Kuchar Liermann

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  10. DanaSeptember 26, 2009 at 6:22 AM

    GO ELLIS!!! What a FIGHTER!!! That is such WONDERFUL news! I loved the new pix, especially the birthday party one...how special! Thank you so much for keeping us informed; you and your beautiful family are in my thoughts and prayers every single day.
    Love,
    Dana Brinkman

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  11. AnonymousSeptember 26, 2009 at 6:36 AM

    Wonderful news guys!!!

    Lots and lots of love and hugs from Australia

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  12. AnonymousSeptember 26, 2009 at 12:39 PM

    This is fantastic news!! Many thoughts and prayers have been heading your way and they will continue doing so!! He is SUCH A FIGHTER!! We couldnt be happier!! We love you all vey much and will keep thinking about you :) Go Ellis GO!!!! You can make it through this!! Love Jessie, Mary, Rick and Aaron

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  13. PeriwinkleSeptember 26, 2009 at 2:55 PM

    Fantastic news!! Thanks for the pictures too!! We will keep working on positive thoughts for all 4 of you, and especially for Ellis to continue his good progress!
    Love,
    Judi, TimO, Claire and Teo

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  14. UnknownSeptember 26, 2009 at 8:36 PM

    Great news. Wonderful photos. Take care!
    Love, Julie

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  15. KathySeptember 27, 2009 at 8:00 PM

    My God continue to Bless Ellis with better stats as the days pass- still praying for all of you...Kathy

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