Saint Louis Children's Hospital has a wonderful rooftop garden on the 8th floor with a spectacular view of Forest Park. Here's a clip of Lilah enjoying the garden.
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his birth
Ellis was born on August 27th, 2009 at 4:23am, weighed 7.2 lbs and was 21 inches. Labor was short; he was born 6 hours after the first contraction. My pregnancy and his birth were uncomplicated except for the presence of meconium during delivery, which he inhaled. James and I were able to hold him for a couple minutes each and then Ellis was taken away for a chest x-ray...and life support. We have been unable to hold him since.
his diagnosis
Ellis was diagnosed with meconium aspiration syndrome (MAS) and rushed to Saint Louis Children's Hospital 14 hours after his birth. Because Ellis is not recovering as quickly as most newborns with MAS do, a lung biopsy and blood tests were performed - these ruled out some rare disorders. At this time, his doctors believe that it is just a severe reaction to the meconium which has contributed to Ellis’ slow recovery, but they admit they are not 100% sure and continue to look for other causes, such as Persistent Pulmonary Hypertension of the Newborn (PPHN).
Blog Archive
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2009
(33)
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September
(20)
- holding ellis
- Ellis Faron Wakes Up (Video)
- awake
- prayers for benjamin
- 24 hours
- hey, turn that ventilation down!
- 30 hours later
- the setback on ecmo
- no mo' ecmo
- going off ecmo
- still on ecmo
- children's garden
- because of you
- uncharted treatment
- what to wear?
- lung transplant?
- day by day, hour by hour
- weening off ecmo
- poo really does happen, twice!
- the end of ecmo?
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September
(20)
About Me
- Christine
- Saint Louis, Missouri
Before ECMO
ECMO Machine
Mom, Dad, and Ellis
Our Family
So glad you can steal a few moments to play!
ReplyDeleteThinking of you,
Meghan and Graham